Scarlett is home!

YAY! Scarlett came home last Thursday! :) What stinks, however, is I think she had a tummy bug yesterday and today. But she saw her Cardiologist today and he said that the fluid in her lungs is almost completely gone, her breath sounds are clear, she is doing good on her meds and gaining weight nicely! He also said that she is a little more blue than most Glenn patients and breathing faster than she should, but it could  be because she isn't feeling well because she wasn't breathing that fast or so blue in the hospital. She may need to go back to CHOP for another Cath. Otherwise she is doing good.

Scarlett is liking it at home. She looks around and smiles, makes faces with her amazing big brother, laughs and smiles, oh and flirts with all the neighbors ;)

Slow and Steady!

Slow and steady...that is Scarlett's progress lately. The Chyelothorax was quite a scare and it hasn't completely gone away but hasn't really reaccumulated. Finally, Wednesday, after 64 days in the ICU (of all types) she made her way to the Pediatric Ward! It's nice because we can stay with her and get used to doing all of her care, but then again it's rough on Noah not being able to spend anytime as a family except for at the hospital.

Scarlett has been completely weaned off of all of her sedation medications and now just has Reglan (spelling?), Prilosec, Vitamin D, Lasix and her Lovenox Shot. YAY!! That is a huge change from when she came from CHOP, her medications list was 2 pages long!! They have been letting us give her Lovenox shot since we have to do it at home and it's not as hard as I had thought it would be. They are using much smaller needles than they did in CHOP.

They are working on getting her on a much more managable feeding schedule than the 24 hour continuous feeds and once that happens they said she can come home!  :)