Fourty two days and three hospitals to be exact. That is how far we have been on this leg of our journey. Countless miles, countless tears and no end in sight quite yet. We are now at Walter Reed, but not sure for how long. Scarlett has a pleural effusion, or fluid filling in the pleural cavity in her chest (the area around the lungs). It is not uncommon for the type of surgery that she had. They have drained it once and got four ounces of fluid out. It is not the type they were hoping it was, because the kind it was will and is coming back. They have given her more diuretics and are going to change her formula to try and stop it. If this doesn't work then we will end up back at CHoP to get a cardiac cath and a chest tube put in to let it drain. If that happens it takes a long time, an estimated six to eight weeks, to heal. The good news from all of this is, it WILL heal, it could just take a while. That is the worst case scenario and I can deal with that. Of all the reasons to be going back to CHoP, even though I would rather not go at all, I am ok with it being this. I did tell Scarlett the next time we travel I would prefer it to be to Mexico, I'm hoping that's the case.
I want to thank everyone for thier thoughts, prayers and help that everyone has given! I will update, hopefully with good news, soon.
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