The heart of a child is a rare thing, full of wonder, joy and a zest. Some babies are born with broken hearts, and those let the joy,wonder and zest spill over into their spirits. Scarlett was one of those born with a broken heart, however, unlike most her's can not be mended like first thought. We are soon going to be headed to Philadelphia to wait for a new heart.
On the Thursday after her g-t...ube was put in (Dec 15th) she coded and had to be ressucitated or as I say permanently claimed her spot in the CICU. She is having mini heart attacks and it is damaging her heart muscle. We will be headed there as an in-patient transfer as she is too critical to be taken off of the oxygen and medications. We will have ro wait for a heart to become available, then wait about four months after to make sure she does not reject it.
This is in no way an easy journey, but we are surrounded everywhere by amazing people. Our families, the hospital staff, and our amazing friends, new and old!! And of course our faith, we know that no matter how much we worry, it will not change what is going to.happen.
We want to thank everyone for being our support system!!
On the Thursday after her g-t...ube was put in (Dec 15th) she coded and had to be ressucitated or as I say permanently claimed her spot in the CICU. She is having mini heart attacks and it is damaging her heart muscle. We will be headed there as an in-patient transfer as she is too critical to be taken off of the oxygen and medications. We will have ro wait for a heart to become available, then wait about four months after to make sure she does not reject it.
This is in no way an easy journey, but we are surrounded everywhere by amazing people. Our families, the hospital staff, and our amazing friends, new and old!! And of course our faith, we know that no matter how much we worry, it will not change what is going to.happen.
We want to thank everyone for being our support system!!
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